2getherTECH
http://2gethertech.com
2getherTECH's assistive technology provides a safe, cost effective alternative to supporting individuals in their own homes.
 
ABLE National Resource Center (ANRC)
https://www.ablenrc.org
The ABLE National Resource Center (ABLE NRC) is the leading, comprehensive source of objective, independent information about federal-and state-related ABLE programs and activities, including guidance on tax-advantaged ABLE savings accounts.
Adult Disability Starter Kit (for Social Security)
https://www.ssa.gov/disability/disability_starter_kits_adult_eng.htm
Information and facts about  registration for Social Security as an adult.
Alzheimer's Association
https://www.alz.org
The Alzheimer's Association leads the way to end Alzheimer's and all other dementia — by accelerating global research, driving risk reduction and early detection, and maximizing quality care and support.
American Association of Intellectual & Developmental Disabilities (AAIDD)

http://www.aaidd.org

Founded in 1876, AAIDD, and formerly known as AAMR, AAIDD is the oldest and largest interdisciplinary organization of professionals (and others) concerned about developmental disabilities.

Autism Clinic - Children's Mercy Kansas City
https://www.childrensmercy.org/departments-and-clinics/developmental-and-behavioral-health/autism-clinic
Children’s Mercy is one of six Autism Centers designated by the state of Missouri. We provide comprehensive diagnostic services for children whose families suspect they may have autism or a related disorder.
Autism Society of America (ASA)

http://www.autism-society.org

ASA is a national association for people with autism. The site connects individuals with autism and their families to reliable information and referral resources.

Association of People Supporting Employment First

https://apse.org

The Association of People Supporting Employment First (APSE) is the only national membership organization focused exclusively on Employment First to facilitate the full inclusion of people with disabilities in the workplace and community.

Brain Injury Association of Missouri

https://www.biamo.org

The Mission of the Brain Injury Association of Missouri is to reduce the incidence of brain injury; to promote acceptance, independence and productivity of persons with brain injury; and to support their families, caregivers and the community.

Center for Parent Information and Resources (CPIR)

https://www.parentcenterhub.org/

"Your central 'Hub' of information and products created for the network of Parent Centers serving families of children with disabilities."

Cerebral Palsy Group

https://cerebralpalsygroup.org

"Improving outcomes for children with cerebral palsy through research, evidence-based therapy, teaching and technology."

Cerebral Palsy Guidance
https://www.cerebralpalsyguidance.com/cerebral-palsy
"Cerebral Palsy Guidance was created to provide answers and assistance to parents of children with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance."
Child Disability Starter Kit (for Social Security)
https://www.ssa.gov/disability/disability_starter_kits_child_eng.htm
Information and facts about  registration for Social Security for a child.
Children's Health Insurance Program (CHIP)
https://www.insurekidsnow.gov
Millions of children and teens qualify for free or low-cost health and dental coverage through Medicaid & the Children's Health Insurance Program (CHIP). 
Disability Resources 101 - Benefits Videos
https://mo.db101.org/video/benefits/
These videos will help you learn more about benefits, and see how work can help people get to their best life.
DW Auto & Home Mobility
https://www.dwauto.com
Epilepsy Foundation

http://www.efa.org

This web site provides information about epilepsy and its effects on people's lives.

Family Voices

https://familyvoices.org

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  

Got Transition

https://www.gottransition.org

Got Transition helps youth and young adults move from pediatric to adult health care.

Governor's Council on Disability - Missouri

https://disability.mo.gov/gcd

The Governor´s Council on Disability (GCD) promotes full participation and inclusion of the nearly 1 million Missourians with disabilities in all aspects of community life by educating citizens, businesses, schools, universities and others of their rights and responsibilities under the Americans with Disabilities Act.

Hypoxic-Ischemic Encephalophy (HIE) Help Center

https://hiehelpcenter.org

The HIE Help Center seeks to support and inform the families and loved ones of children with disabilities stemming from hypoxic-ischemic encephalopathy (HIE)

IntellectAbility - Replacing Risk with Health and Wellness

https://replacingrisk.com

Comprehensive suite of risk resolution and learning tools for professional supporters: tools that empower, educate and inform those responsible for protecting, maintaining and restoring health, wholeness and a good quality of life for people with I/DD.

Intelligent.com

https://www.intelligent.com/deaf-and-hard-of-hearing-student-online-college-guide

This guide is created to help deaf and hard of hearing students learn about online accommodations colleges offer to comply with the American Disabilities Act, popular listening devices and applications, and scholarships. It also provides a list of the 5 best colleges for students with hearing disabilities as well as additional helpful resources.

InternetAdvisor - Internet Access For Kids:  A Guide for Parents

https://www.internetadvisor.com/internet-access-for-kids-parents-guide

Blog post from internetadvisor.com about parent information for ensuring safe internet usage by children.

JAN - Job Accommodation Network
https://askjan.org
The Job Accommodation Network (JAN) is a source of free, expert, and confidential guidance on workplace accommodations and disability employment issues.

Knights of Columbus Developmental Center

https://www.ssmhealth.com/locations/location-details/knights-of-columbus-development-center

The Knights of Columbus Developmental Center at SSM Health Cardinal Glennon Children’s Hospital serves children with special needs in the St. Louis region. Our developmental pediatrics team includes neurologists, psychiatrists, psychologists, nurses, speech-language pathologists, occupational therapists, a family resource specialist and education coordinator, social worker and an active research team.

Mercy Kids Autism Center

https://www.mercy.net/practice/mercy-kids-autism-center

Mercy Kids Autism Center provides a child-and-family-centered approach to ASD. Our services include diagnosis, medical and psychological care, family navigation services and treatment programs. We develop a tailor-made care plan for your child in partnership with you.

Missouri Assistive Technology

https://at.mo.gov

Retailor of assistive technology to increase access to assistive technology for Missourians with all types of disabilities, of all ages.

The Missouri Association of County Developmental Disabilities Services (MACDDS)

http://www.macdds.org

MACDDS is a statewide association of county boards for the developmentally disabled dedicated to local control and provision of supports and services.

Missouri Department of Developmental Disabilities

https://dmh.mo.gov/dd

Missouri Department of Elementary & Secondary Education  

http://www.dese.mo.gov

The Missouri DESE site provides information concerning Missouri's public schools and special education services.

Missouri Department of Mental Health

http://www.dmh.mo.gov

The Missouri Department of Mental Health operates the Divisions of Developmental Disabilities, Comprehensive Psychiatric Services, and Alcohol and Drug Abuse.

Missouri Developmental Disabilities Council (MODDC)

http://www.moddcouncil.org

MO-ABLE

https://www.moable.com/

STABLE Accounts allow individuals with disabilities to save and invest money without losing eligibility for certain public benefits programs, like Medicaid or SSI. Earnings in your STABLE Account are not subject to federal income tax, so long as you spend them on “Qualified Disability Expenses.”

MPACT - Missouri Parents Act

https://www.missouriparentsact.org

Missouri Parents Act (MPACT) is Missouri’s Parent Training and Information Center, funded in part by the U.S. Department of Education and the State of Missouri. Our mission is to empower families to advocate for themselves so that children with special educational needs can reach their full potential in education and life – through support, training, and education.

National Alliance on Mental Illness 

https://nami.org

NAMI Missouri is a 501(c)(3) tax exempt organization, and was founded in 1985 to provide education, support and advocacy on behalf of people with serious mental illness and their families regardless of race, religion or national origin.

National Council on Disability

https://www.ncd.gov/

NCD is an independent federal agency charged with advising the President, Congress, and other federal agencies regarding policies, programs, practices, and procedures that affect people with disabilities.

National Task Group On Intellectual Disabilities and Dementia Practices

https://www.the-ntg.org

The ‘NTG’ is a not-for-profit organization charged with ensuring that the interests of adults with intellectual and developmental disabilities who are affected by Alzheimer’s disease and other causes of dementia – as well as their families and friends – are taken into account as part of the National Plan to Address Alzheimer’s Disease.

Night Owl  Support Systems, LLC (NOSS)

https://nossllc.com

Night Owl Support Systems, LLC (NOSS) is a Remote Supports company, which is a unique a way to support people in their own homes.

OpenNotes

https://www.opennotes.org

OpenNotes is the international movement promoting and studying transparent communication in healthcare. We help patients and clinicians share meaningful notes in medical records. We call these open notes.

Ready

https://www.ready.gov

Ready is a National public service campaign designed to educate and empower the American people to prepare for, respond to and mitigate emergencies, including natural and man-made disasters. The goal of the campaign is to promote preparedness through public involvement. 

StationMD

https://www.stationmd.com
StationMD offers telemedicine solutions, with secure video-conferencing, for vulnerable populations including people with developmental disabilities. Their service allows patients the ability to receive quality care from their own home or chosen location without having to enter a hospital or other medical setting.
The Arc

http://www.thearc.org

The Arc is a National Association of and for people with developmental disabilities and their families.

The Arc of Missouri

https://thearc.org/chapter/the-arc-of-missouri

The National Organization for Rare Disorders (NORD)

http://www.rarediseases.org

NORD is a unique federation of more than 140 organizations serving people with rare disorders and disabilities.

The Thompson Center for Autism & Neurodevelopmental Disorders

https://thompsoncenter.missouri.edu

Serving families affected by autism and other neurodevelopmental disorders with expert diagnostics, evidence-based clinical care, groundbreaking research, and compassionate support.

United Cerebral Palsy Association (UCP)

http://www.ucp.org

UCPA is a national association dedicated to research and information dissemination.

Resources